Neurological Dilemma & Frustration

So I found a doctor at U of Texas in Dallas that performs the Focused Ultrasound for people who have Essential Tremor or Parkinson's with Tremor.  I have contacted their coordinator in Texas and have requested my Neurological Medical Records to be sent to them.  But I also need a referral from my current Neurologist too before they can even set up an initial appointment.(This is a many step process to have the Focused Ultrasound procedure and at this point the initial appt. would be 3-4 weeks out from when they get the referral and the actual procedure is a YEAR out.  So needless to say, I am in a hurry to get this all going!)

My problem is with my current neurologist.  He is beyond unresponsive!  

Certain tests he ordered back on Jan. 31st were never done(3-were urine based and the lab didn't ask me for a urine specimen and 1 blood test came back that the sample they sent to the Mayo Clinic was insufficient to perform that test on my blood).  As of today, May 22nd, my neurologist has not submitted an order for these 4 tests to be done/redone.

Then I had 2 MRIs performed on March 16th.  I have had no feedback or contact from said neurologist as of today on these 2 MRI results.  I am assuming the results were ok but it would be calming to get any sort of call/text/note in the portal saying that's all ok.  Nada.

This Neurologist requested at the time of my Jan. 31st appointment that I be scheduled for a follow up appt. in 8-9 months from then.  The problem is that their scheduling system only goes 6 months out, so once I was 6 months within range from that appointment in Jan., I have messaged the department three times on three different occasions about scheduling an appointment.  As of today, no one in scheduling has responded to my requests. 

On April 5th I messaged through the patient portal that my Dermatologist at U of Mississippi needed my Neurological records as there was a possible issue we are pursuing in regards to her treatment of my HS and these records might hold some information needed.  I gave him her name, address, phone and fax # and guess what?  He never sent anything to her.  And I gave him ample time(appt. with Dermatologist was May 13th)so over a MONTH lead time and he couldn't take two minutes to respond-to send records or let me know what I needed to do to get those records to her?

Now I am waiting on a response from him in regard to the referral I need to be seen to Dallas to be a possible candidate for a Focused Ultrasound procedure.  Friday will be a week since I sent this latest request to him and I have had no response yet.  Of course, I figured I'd get push back on Focused Ultrasound from this department because NO DOCTOR IN LOUISIANA is licensed/trained to perform this procedure so it's not even on their radar as a treatment!!  But the least he could do is respond to ANY of my attempts to contact him.

So what do I do now?

I am so not happy that if I get that referral any time soon, it means I still have to live here for at least another YEAR+(I'd need to have a follow up 6 weeks after the procedure too).  If I ever get the referral and get to Dallas for appointments and testing, it may turn out I am not a candidate if my skull is too thick(as the ultrasound won't penetrate to my brain).  But I at least want the opportunity to try to go for it.

But if we don't pursue this in Dallas it means having to move/sell house/relocate somewhere there is another qualified surgeon who performs this procedure, find a neurologist(not easy to find one to take you on as a patient and may be months to find one and get an appointment)and then start the process all over again.  Leaving before we get on the schedule in Dallas would extend the time line for the procedure even longer. sigh

I am just so over the lack of communication with this neurologist and his laissez-faire attitude toward the treatment of my conditions.  It seems to be a recurring theme in Lousyana.....this "we'll get to it, when we feel like it" in businesses and medical practices.

I am so frustrated and low I just want to give up sometimes.  Not get the medications refilled and sit in a chair and shake so badly that I can't feed myself, write, or do anything productive.  I just need some good wishes and thoughts and for this horrible neurologist to at least send a referral.  I hate being on these drugs he prescribed me for ET and they don't work all the time and they make me so loopy.  Let's just drug her up and she won't bother us is how I feel that they are doing.

Sluggy