I am taking a break because of neurological issues that make it nearly impossible to use my hands.
The soonest I can get a Neurology consult, testing and diagnosis is February of next year here!
I've been waiting 2 Freaking YEARS! Symptoms have starred to rapidly to progress now but nobody will schedule me something now. This has become an urgent matter since there are neurological diseases on both sides of my family-father, with MS, his sister's daughter who died 2 years ago, as well as my maternal grandfather's mother suffered from severe MS almost her whole adult life.
I haven't been able to write for a few months and now my hands shake so bad I can hardly use a keyboard on this computer without having to retype letters constantly. The tremors make me hit a key multiple times which means going back and correcting my typing over and over again.
This brief message has taken me over an hour to type.
So say a prayer that the issue gets addressed sooner than next year and I can regain the use of my hands.
Sluggy
I am in a murder jury trial this week and pulled up your blog for just a minute to check and see if you are ok. Well, apparently not! Virtual hugs and prayers that you get your physical issues resolved. That is so concerning. Cindy in the South
ReplyDeleteso sorry you are going through this. I had no idea. That is crazy that it is taking so long to be seen - no excuse for that. I will surely keep you in my prayers for healing and comfort. Thank you for letting us know. Take care sweet lady. Have someone keep us updated.
ReplyDeleteCan you contact Mayo hospital or Cleveland clinic to get an appointment (assuming you have traditional Medicare and a supplement)…or maybe Barrow Neurological? Hilogene in Az
ReplyDeleteI'm sorry to hear this and wish you the best.
ReplyDeleteI am so sorry you are going through this. The healthcare system is failing us. It is ridiculous waiting to get into a dr when you need one right away. Sending you prayers and healing thoughts. I hope you get the help you need quickly. Lori R
ReplyDeleteWOW! my little finger started with tremors, now my whole left arm and hand at times. But, I think it is the damage from torn rotator cuff. I hope.
ReplyDeleteHave you tried Mayo Clinic, Cleveland Clinic, or another. They will talk to you on the phone and give advice, maybe a referral or appointment if you desire. I called LSU once and got life-saving advice.
Please go to friends or family where you can get an mri and neuro work up asap. Call your insurance company and get lists of providers.
ReplyDeleteI had shaking and waited too long,. I wound up with seizures, and was in and out of hospitals and was very sick for 4 years. I needed a full time aid and had to learn to walk again. Times is of the essence and there are treatments that can help your symptoms. You deserve a long and healthy life. Get going…
Sending healing thoughts and prayers
Prayers going up for you. You can contact Mayo Clinic without referral. My daughter had a brain tumor that her dr wasn't too worried about because it was small. The dr got her a appointment with neurologist for 8 months out. Daughter was having horrible migraines and losing sight in one eye. Daughter contacted Mayo clinic in Minnesota on her own and they made her a appointment for the following week. She spent a week getting checked from head to toe by different specialists. Had brain surgery 2 weeks later. And eye sight came back and no more migraines. Not sure which Mayo Clinic is near you but it may be worth a try.
ReplyDeleteYou are in my prayers for improved health and for much faster medical help. Suze
ReplyDeleteJre I’m so sorry for what you are going through. I’ll pray if that’s ok. The only other thing I’d could offer is to get a voice activated computer program (there was something called I think dragon that you talk and it types….). I know there’s other programs out there. My nephew was a quadriplegic and he could do anything on the computer. That doesn’t address your neurological problems but I’d find the nearest best large medical ? Teaching hospital and go into the ER! Lie if you need to, certainly let them know about all your current previous symptoms but blah blah “you’re visiting that city and suddenly can’t feel …etc. and you now have acute dire symptoms” … (which really isn’t a lie) and they should pull in a full neurological consultation. Not sure it’ll work but can’t hurt. Our medical system is broken. PS I’m a RN
ReplyDeleteSoignez vous en France aussi les délais sont très long ,mon compagnon a une maladie neurologique c'est très dur ,bon courage
ReplyDeleteI am so sorry that you are going through neurological problems. Sounds a bit scary too. You are in my prayers. Thank you for letting us know, and I'm sure that there are many prayer warriors among your readers.
ReplyDeleteHealth care in this country is insane these days. Can you talk with the patient advocate at the hospital when you have your knee surgery? It can't hurt and maybe they can get you seen quicker than Feb. Also there are free speech to text apps that might help if you want to dictate letters and such instead of typing. Hope you can get some answers and treatment soon.
Thank you for clarifying. You are in my prayers. Just work on yourself my friend.
ReplyDeleteHi Sluggy, this is Chris. I am so sorry, I had no idea you were dealing with this. I will pray for you. Hopefully there will be a cancellation and you can get in sooner.
ReplyDeleteSince there has been some rapid progression would your regulear medical doctor call to make you an appointment for you? They do have a duty of care and that is ridiculous you have to wait that long. I am sorry you have been feeling so lousy. Can you go out of state and be covered? Emory U. in Atlanta, Duke U in Durham NC, Mayo Clinic in Jacksonville FL are some of the top hospitals for Neurological conditions. It may be worth a try. Good Luck.
ReplyDeleteBarb in PA
Oh, my! Definitely praying! Is there a large-ish city where you live that could maybe have someone see you sooner if you have a referral from your PCP? DO mention your family history. That might help. --Elise
ReplyDeleteHave you considered the emergency room and refuse to leave until they do testing? Prayers for answers soon! Debbie
ReplyDeleteSending you love, and I hope this does not take until February for you to get taken care of.
ReplyDeleteTry the Mayo clinic. It has to be quicker.
ReplyDeleteSo sorry to hear that you are dealing with this. That is crazy that you've been dealing with it so long and can't get the care you need. Prayers that you can get this checked out sooner than later.
ReplyDeleteI will pray for you .
ReplyDelete(((((Sluggy))))) You will definitely be in my prayers. I hope they can see you much sooner than February!
ReplyDeleteI'm so sorry to hear this! Getting into neurologists is so hard (been there with dh) and in his case when he finally would get in, they'd say "we don't know what it is". I'm sure you already know this but make sure you are on the list in case anyone else cancels their appt.
ReplyDeleteOh Sluggy I am so sorry. I will be praying for you and that you get into see a specialist very soon! I can't believe they think you can wait that long. I appreciate all of your blogging over the years. You're awesome!
ReplyDeleteWishing you fast recovery Sluggy. Hope, you can get to see a specialist soon and be back with us. Will miss you. Sending positive thoughts and healing vibes your way.
ReplyDeleteLong time reader, seldom comment. Sending positive thoughts for answers and healing.
ReplyDeleteI am so sorry and having a genetic disease myself I understand. I hit keys multiple times some days and it is so frustrating. Praying for you.
ReplyDeletePrayers for you .
ReplyDeleteI’m very sorry to hear about your health issues and hope you can see a specialist about them soon. I’ve enjoyed your blog immensely so thank you for all the years of blogging
ReplyDeleteSending you lots of good thoughts, and fingers crossed that you are able to get in to see the doctor ASAP. I'm so sorry to hear that you are struggling to write, and can't imagine how frustrating that would be.
ReplyDeleteI am so sorry to hear about this. I hope this gets resolved quickly.
ReplyDeleteI'm sorry this is happening.
ReplyDeleteHave you tried to use a talk to text program on your computer for your typing needs? I don't have any experience with any, but I do know thy exist.
This comment has been removed by the author.
ReplyDeleteThis comment has been removed by the author.
DeleteJre I had a sister in law that that had escalating GI issues nausea, vomiting and increased pain even later going jaundiced looking. She’d had a gastric bypass months before. Her original surgeon poo pooed everything and did nothing after multiple calls/appointments, next largest city, Fargo didn’t want to touch her as she needed to follow up with her surgeon (yeah that didn’t work….). I got a call from her sister (another SIL) wondering what to do! She lived about 2 hours west in ND. I told them plus (2 BIL) put her in a car and go as fast as you can to Minneapolis to Fairview (UofM). They pulled into their ER (actually went to other hospital in error but Hennepin County which did great!) and within hours she was in surgery. They said she would have died if she’d waited longer. Part of intestine dying and tiny nick in her liver. This was years ago but still I think fits current problems. Driving 6 hours to an ER!
ReplyDeleteI'm so sorry you are having such a hard time. I hope you can get care soon. It's ridiculous the waits to see specialists these days. Treat yourself kindly and do what you need to do. Go to ER if that'll help. I'll keep you in my thoughts.
ReplyDeleteHubby's primary put him on Metoprolol Tartrate for tremors. He finally saw a neurologist that said the primary needed to increase the dosage as Hubby's tremors are worse since the accident. He also had Hubby's Vitamin D checked, Primary had done that last winter. Both doctors said to make sure he was eating foods with ALL the vitamin Bs. I know part of the drag of time of you getting in to doctor is being a new patient. Call back the doctor's office and ask if they have a cancellation list. Son2 got in quicker to a doctor by being willing to go in at the last minute.
ReplyDeleteMy heart breaks for your physical limitations. Take care of yourself!
ReplyDelete