Sunday, May 17, 2026

WHERE DO I BEGIN?

Hubby is typing this for me, because I am unable to type at this time. It started with an innocuouse UTI on December 17. Trip to Urgent Care and prescription for antibiotic. Woke up the next morning and could neither stand nor walk. Trip to the ER. They admitted me and after 6 days discharged me to a Nursing Home & Rehab Hospital. No clear diagnosis, but everyone assumed my condition was connected to the UTI and possibly a couple of my medications. I was also have difficulty speaking and swallowing. After 3 weeks of attempts to get me to stand, I was discharged home, with the hope that home physical therapy would be more successful. That was not the case as after 8 weeks Home Health Care has to cease because Medicare would no longer pay, due to lack of progress and the inadequate diagnosis. We decided to reach out to the neurologist who treats my essential tremor and request a brain MRI to see if that might explain what was happening. His initial response was that he or a PA would need to examine me before a new MRI could be ordered. However, 2 days later he scheduled a virtual appoint for the following week. During that appointment, he asked me a number of questions and to perform movements that he could observe. He then expressed dismay that no one treating me had thouhgt to engage a neurologist earlier. He immediately ordered the MRI and a battery of other tests. Before I could have these done, we had a crisis. Dan was out back with the dogs when I threw up my lunch. Given my swallowing problems, we were afraid I might choke, so Dan called 911 and back to the ER we went. The ER doctor took a look at my condition, the medical records and our story of what was going on. His response was that the diagnosis I was given did not make sense from what he was seeing. He decided to conduct a comprehensive evaluation. When this was completed, he concluded that I was too ill to be treated at this small local hospital and had me transferred to the main Lehigh Valley Health System hospital in Allentown. Once there, the tests previously ordered by my neurologist were performed along with a battery of other tests. The hospital's neurologist concluded that I was suffering from "Parkinsonsism," and put me on a drug used to treat Parkinson's. My speech and swallowing immediately improved, although the swallowing not completely. Two weeks later they discharged me with a bunch of new medications and new orders for home health care and therapy. Some movement to my arms has returned, but I cannot open my hands completely, The strength in my legs is returning, buy not yet enough to stand without assistance. Given the positive response to the Parkinson's medication, they have increased the dosage in hopes of seeing further improvement. I spend some time every day out of my hospital bed and in a wheelchair, which I am beginning to be able to move on my own. How much progress I am ultimately able to make is still an open question. I don't know yet when my hands will allow me to resume blogging. Keep praying for me, if you're so inclined. I appreciate it.

29 comments:

  1. I am so sorry to hear this. Prayers for your continued recovery.

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  2. Slight - so good to hear from you - Thank you hubby. Praying hard for you. Melissa

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  3. I'm so sorry that you have been going through this for so many months. I was thisclose to writing to you out of concern, considering the length of time that you have not posted. I "know" you through Chele, who I met years ago through Beanies. Some day, when you have regained your health, perhaps you can tell me the cause of her daughter's death. I can share my email privately if there is a mechanism for that.

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  4. I stop by regularly hoping to see you post. I was glad to see you had - until I read the contents. Patience above! I hope the clarity of the condition leads to some relief via proper treatment. Please keep us posted. And yes, I will say a prayer or two for you now and always.

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  5. So very glad to see a post! And I am so sorry for all you've been through. Thank God you've been properly diagnosed and are seeing improvement.
    Blessings & prayers to you both.
    Susan in the Pacific Northwest

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  6. Praying for you! Eileen

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  7. I am so sorry to hear all that you have been through. Hopefully they have more answers now and you are receiving the right treatment. Prayers going up for you!!

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  8. So sorry you have been so sick. I was wondering where you went. I hope the new meds help. I will pray for you.
    Hugs, Bun

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  9. My goodness, what a mess this has been for you. I often wonder why some doctors are called doctors - they just don't see what is in front of them. God bless you and many prayers for a full recovery.

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  10. So happy to read a post from you yet so sad for all you have been through. Prayers will keep going up.

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  11. Sluggy, I have been praying for you and will continue. I appreciate that you gave an update. I am so sorry you are dealing with this but hope now that you have a diagnosis, things will get better and better for you. I am glad the meds are helping.

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  12. (((((Sluggy))))) Bless your heart. I'll be praying for you. I've been wondering about you and you were even on my mind this morning. Thank your hubby for us for the update!

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  13. Oh Sluggy, so good to hear from you! Keep fighting. I love you! Not Bossy!

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  14. It was good to see an update. I am sorry this has been happening. Still praying.

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  15. my goodness me, I will pray for you and your continuing recovery. What a journey you have been on. XXXXX

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  16. Wow wow wow you've had a lot going on !Thanks for updating us on your condition I will pray for you.Glad to hear that there is improvement finally happening for you.

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  17. Prayers and hugs to you! So thankful a doctor figured out the problem finally!! Debbie

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  18. Sluggy, so good to hear from you! Love you!

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  19. JRE here I have been missing your blog and check in every once in awhile. What a horrible mess you have been in!! It’s crazy the lack of comprehensive medical care! I’m praying you will see ongoing improvement! Hope to get more positive updates.

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  20. Praying for you this morning from East TN. I've sure missed your posts. I was always happy to read an update from you on other blogs. I hope you will be absolutely surprised at how much help an increased dosage will be to you. -- Angie

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  21. I'll be praying hard for your recovery. Miss your posts!

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  22. I am thrilled so far with this progress.

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  23. I wish you all the love and best.
    Greetings from Germany,
    Jodi

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  24. I am praying for you. I have been worried that you haven’t blogged I usually check every day. We are having similar problems with my husband he just got out of the hospital Sunday. He has many health issues & cannot stand or walk but just a few steps. It is so hard not to be able to do the things you want/need to do. I hope the new medication changes do wonders for you.

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  25. I am so glad to read an update from you. I have been checking this site regularly, hoping for an update, and praying for you. Thank you to your husband for typing this for you! You have plenty on your plate, but it sounds like you have good medical people figuring this out for you. Hang in there, and know people are thinking of you.

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  26. Oh my goodness Sluggy, this is just awful news. I was wondering what happened to you and where you were because no entries had been entered onto your blog. I am so happy that they at least know what is wrong and are treating you correctly. Yes, I will pray for you. God is good and Jesus does the healing! Amen to that. I am so glad that you are back and you have taken the time to let us know. Thank you for that. God bless. Speedy recovery!! Cindy In The North

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  27. I was looking for you just a few days ago...I am not a faithful follower of any blogs, really, but I check in on several from time to time. And I was stunned when I saw you hadn't written anything since December! OMG, I thought you died or something....I checked Out My Window...nothing. Good grief, girl, you've been through it, haven't you? Several times over!! I hope you're on the way to better health now; thankful you have a neurologist who knows what he's doing. Get well, stay well. (Thanks to your hubs for filling us in)
    Melinda

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  28. I just prayed for you sweetheart.
    I'm currently in the hospital.
    Been here weeks.
    My heart goes out to you.
    Thank God for that ER physician
    Who figured out something is not
    right and moved on it.

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